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Amish/Mennonite Research Contact Registry

Research Contact Registry for Members of the Amish and Mennonite Communities

Who can join

As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.

Age
No age limits stated
Sex
All sexes
Healthy volunteers
Accepted
Compensation
Not stated

Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.

What to expect

No one can promise a trial will help you personally — that is what the research is trying to find out.

What participation involves

  • Procedures mentioned: Interviews

Only what the study's summary and detailed description on ClinicalTrials.gov say. Time periods may describe the whole study or a part of it — ask the study team what applies to you.

Show the study's own words
  • "One-on-one interviews with a clinician, or with primary and co-investigators, will be conducted."
  • "This interview may take place in a clinic setting or the participants home or regional environment."
Compensation
Not stated
  • Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
  • Participants are monitored closely by the research team throughout the study.
  • Some participants may receive access to an investigational treatment, which is still being studied.
  • Your participation helps researchers learn whether this approach could help future patients.

About this study

In plain language

This registry is a contact list for Amish and Mennonite people interested in future medical research. It helps researchers offer studies based on a person's health history and their family's health history. Future studies will focus on learning about health conditions that affect Amish and Mennonite people.

The purpose of this registry is to find members of the Plain Community who are interested in participating in future medical research studies. Having a registry makes it easier to contact and offer study participation to individuals who are appropriate for a new research study based on their own and their family medical history. Studies will focus on increasing knowledge about disorders affecting those who are Amish and Mennonite.

Compensation is read from the study's own description and may be missing — always confirm with the study team.

Eligibility

Who can join

  • Amish or Mennonite adults age 18 or older.
  • Amish or Mennonite children with a parent's permission.

Who can't join

  • Adults age 18 or older who do not speak English.
  • People who are not Amish or Mennonite.

Simplified for readability. The official criteria below are what the study team uses.

Official eligibility criteria

Inclusion Criteria: * Amish and Mennonite men and women age 18 or older * Amish and Mennonite children with the permission of a parent Exclusion Criteria: * Amish and Mennonite men and woman age 18 or older who do not speak English * Those who are not Amish or Mennonite

Study sites (1)

PA