Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
ENGAGE-D: Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
Who can join
As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.
- Age
- 18 Years and older
- Sex
- All sexes
- Healthy volunteers
- Accepted
- Compensation
- Not stated
Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.
What to expect
No one can promise a trial will help you personally — that is what the research is trying to find out.
What participation involves
Not stated in the study description — ask the study team about visits and procedures.
- Compensation
- Not stated
- Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
- Participants are monitored closely by the research team throughout the study.
- Some participants may receive access to an investigational treatment, which is still being studied.
- Your participation helps researchers learn whether this approach could help future patients.
About this study
In plain language
This study tests a care plan and checklist to help people with advanced dementia and their care partners move from home healthcare to hospice care, which is care near the end of life. It will check how well the approach works in daily care, when people enter hospice, and how satisfied care partners are. The study includes care partners and home healthcare staff.
This study will test a care management intervention to guide end-of-life care and hospice transitions for persons with dementia and their care partners receiving home healthcare and ascertain feasibility, acceptability, fidelity, and usability of a dementia care management hospice transitions checklist. This study will also examine hospice enrollment, time to enrollment, and care partner satisfaction with the intervention. The intervention will be delivered within usual care management within a large home healthcare agency.
Compensation is read from the study's own description and may be missing — always confirm with the study team.
Eligibility
Who can join
- Care partners must care for someone diagnosed with moderate to severe dementia, which affects memory and thinking.
- Care partners must be able to understand the study and agree to take part.
- Care managers must regularly help care partners of people with dementia plan a move to hospice.
- Medical providers, such as doctors and nurse practitioners, must refer patients to hospice.
- Home healthcare leaders must work with the Certified Home Health Agency or Advanced Illness Management Program that refers patients to hospice.
- Care managers, medical providers, and home healthcare leaders must be age 18 or older.
Who can't join
- Care partners or people with dementia who are under age 18.
- People with mild cognitive impairment, meaning mild problems with memory or thinking, and their care partners.
- Healthcare staff who have no experience helping people with dementia move to hospice.
Simplified for readability. The official criteria below are what the study team uses.
Official eligibility criteria
Inclusion: Care Partners and PLWD Dyad: 1. Care partners of PLWD who have a diagnosis of moderate to severe dementia. 2. Able to provide informed consent HHC Professionals: Care Managers and Field Nurses: 1. Care managers who regularly engage hospice transitions with care partners of PLWD 2. Age 18 or older Medical Providers: 1. Medical providers (e.g., physicians and nurse practitioners) who refer patients for hospice enrollment. 2. Age 18 or older HHC Administrators: 1. Home healthcare administrators who work with the Certified Home Health Agency or the Advanced Illness Management Program that refers patients to hospice care 2. Age 18 or older Exclusion Care Partner and PLWD Dyad 1. Under age 18 2. Care partners who are caring for PLWD with Mild Cognitive Impairment 3. PLWD with Mild Cognitive Impairment HHC Professionals: Care Managers, Medical Providers, Administrators 1\. Do not have experience managing hospice transitions for PLWD
Study sites (1)
NY
- NYU Rory Meyers College of Nursing and VNS Health · New York, NY 10010Komal P Murali, PhD, RN, ACNP-BC · Study contact · 212-998-5783 · kp47@nyu.eduMargaret McDonald, MSW · Study contact · margaret.mcdonald@vnshealth.orgKomal P Murali, PhD, RN, ACNP-BC · Principal investigatorMore trials in New York