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Patient-Reported Outcomes Dashboard With Goal Setting to Support Shared Decision-Making in Inflammatory Arthritis

Personalizing Inflammatory Arthritis Rheumatology Care: Integrating PROMIS Measures and Patient Preferences to Improve Shared Decision-Making

Who can join

As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.

Age
18 Years and older
Sex
All sexes
Healthy volunteers
Not accepted
Compensation
Not stated

Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.

What to expect

No one can promise a trial will help you personally — that is what the research is trying to find out.

What participation involves

Not stated in the study description — ask the study team about visits and procedures.

Compensation
Not stated
  • Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
  • Participants are monitored closely by the research team throughout the study.
  • Some participants may receive access to an investigational treatment, which is still being studied.
  • Your participation helps researchers learn whether this approach could help future patients.

About this study

In plain language

This study is for adults with rheumatoid arthritis or psoriatic arthritis, which cause swollen, painful joints. It tests whether showing patients’ symptoms and treatment goals on a screen in their health record helps patients and doctors make care choices together. It also checks whether patients make more progress toward their goals and feel more able to manage symptoms after 6 months.

The goal of this clinical trial is to learn whether showing patient-reported symptoms and personal treatment goals to rheumatology clinicians on a dashboard in the electronic health record improves shared decision-making for adults with rheumatoid arthritis or psoriatic arthritis. The main questions it aims to answer are: * Do patients whose clinicians use the dashboard report more shared decision-making during their rheumatology visits than patients who receive usual care? * Do patients in the dashboard group report greater progress toward their personal goals and more confidence in managing their symptoms after 6 months? Researchers will compare the dashboard group to a usual care group to see if the dashboard improves shared decision-making, goal attainment, and self-efficacy. Participants will: * Complete a routine symptom questionnaire before their rheumatology visits, as all clinic patients do * Choose personal treatment goals and rate their progress toward those goals 6 months later * Complete short surveys before and after two rheumatology visits about 6 months apart Participants in the dashboard group will also complete questionnaires in the patient portal about pain, fatigue, physical function, sleep, and morning stiffness before each visit. Their answers and goals will be shown to their clinician on a dashboard to guide the conversation during the visit.

Compensation is read from the study's own description and may be missing — always confirm with the study team.

Eligibility

Who can join

  • Be age 18 or older.
  • Have rheumatoid arthritis or psoriatic arthritis.
  • Get care at a Northwestern Medicine arthritis clinic and have an upcoming visit.
  • Have an active MyChart patient portal account.
  • Be able to read and fill out forms in English.
  • Be able to understand the study and agree to take part.

Who can't join

  • Cannot understand the study and agree to take part.
  • Cannot fill out study forms in English.

Simplified for readability. The official criteria below are what the study team uses.

Official eligibility criteria

Inclusion Criteria: * Age 18 years or older * Diagnosis of rheumatoid arthritis or psoriatic arthritis * Receiving care at a Northwestern Medicine rheumatology clinic, with an upcoming rheumatology visit * Active patient portal (MyChart) account * Able to read and complete questionnaires in English * Able to provide informed consent Exclusion Criteria: * Unable to provide informed consent * Unable to complete study questionnaires in English

Study sites (1)

IL