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Early Life Exposures Among Children With Sickle Cell Disease

Who can join

As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.

Age
18 Years to 50 Years
Sex
Female only
Healthy volunteers
Not accepted
Compensation
Not stated

Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.

What to expect

No one can promise a trial will help you personally — that is what the research is trying to find out.

What participation involves

Not stated in the study description — ask the study team about visits and procedures.

Compensation
Not stated
  • Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
  • Participants are monitored closely by the research team throughout the study.
  • Some participants may receive access to an investigational treatment, which is still being studied.
  • Your participation helps researchers learn whether this approach could help future patients.

About this study

In plain language

This study looks at how early life experiences, living conditions, nutrition, and breastfeeding relate to health in children with sickle cell disease, an inherited blood disorder. It also looks at ways to help children cope with stress and build healthy habits. It is for mothers of babies with sickle cell disease who live in or near Birmingham, Alabama.

This study is being conducted to determine the relationship between early childhood exposures, such as Adverse Childhood Experiences, Social Determinants of Health and nutrition/breastfeeding, among children with sickle cell disease, and behavioral interventions aimed to reshape psychological resilience and lifestyle factors towards positive health outcomes.

Compensation is read from the study's own description and may be missing — always confirm with the study team.

Eligibility

Who can join

  • Mother of a baby with sickle cell disease.
  • Lives in Birmingham, Alabama, or nearby.

Who can't join

  • Prescribed medicines that can cause birth defects.
  • Has no internet access or limited internet access.

Simplified for readability. The official criteria below are what the study team uses.

Official eligibility criteria

Inclusion Criteria: * mother of infant with sickle cell disease * resides within the city of Birmingham, Alabama or in close proximity Exclusion Criteria: * prescribed teratogenic medications * no/limited internet access

Study sites (1)

AL