Development of a Provider-Focused Intervention to Improve Health Outcomes in Pediatric Sickle Cell Disease
Who can join
As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.
- Age
- 18 Years and older
- Sex
- All sexes
- Healthy volunteers
- Accepted
- Compensation
- Not stated
Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.
What to expect
No one can promise a trial will help you personally — that is what the research is trying to find out.
What participation involves
- Procedures mentioned: Questionnaires
Only what the study's summary and detailed description on ClinicalTrials.gov say. Time periods may describe the whole study or a part of it — ask the study team what applies to you.
Show the study's own words
- "Participants will complete baseline surveys and then be randomly assigned into the intervention or control group."
- "After completing their assigned session (IPT training or education), they will be asked to complete the same surveys as completed at baseline."
- Compensation
- Not stated
- Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
- Participants are monitored closely by the research team throughout the study.
- Some participants may receive access to an investigational treatment, which is still being studied.
- Your participation helps researchers learn whether this approach could help future patients.
About this study
In plain language
This study tests whether training helps health care providers communicate better with children who have sickle cell disease, a blood disorder. The training teaches providers to see each patient as an individual and understand their point of view. Providers who care for these children will get either this training or lessons on sickle cell pain care.
The goal of this interventional study is to learn about the impact of an intervention for health care providers that teaches individuation and perspective-taking (IPT) skills to enhance patient-centered communication in pediatric sickle cell disease (SCD). The main question it aims to answer is: Does an intervention that teaches individuation and perspective-taking (IPT) skills to pediatric sickle cell disease (SCD) health care providers (HCPs) enhance patient-centered communication? Researchers will compare the IPT intervention to a control group who will receive education about SCD pain management to see if the IPT intervention improves patient-centered communication. Participants will complete baseline surveys and then be randomly assigned into the intervention or control group. After completing their assigned session (IPT training or education), they will be asked to complete the same surveys as completed at baseline.
Compensation is read from the study's own description and may be missing — always confirm with the study team.
Eligibility
Who can join
- You are a licensed health care provider who cares for children or teens with sickle cell disease.
- You work for Connecticut Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia.
- Your main work area is hematology/oncology, which treats blood disorders and cancer.
Who can't join
- You do not care for children or teens with sickle cell disease.
- You are a medical trainee. This rule does not exclude fellows, who are doctors getting advanced training.
- You do not work for one of the three hospitals listed above.
- You are not fluent in English.
Simplified for readability. The official criteria below are what the study team uses.
Official eligibility criteria
Inclusion Criteria: * Licensed health care provider (HCP) who provides care to youth with SCD * HCP employed by Connecticut Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia and primary work area is Hematology/Oncology Exclusion Criteria: * HCP who does not provide care to youth with SCD * HCP is a medical trainee, not including fellows * HCP not employed by CT Children's, Yale New Haven Children's Hospital, or Children's Hospital of Philadelphia * Not fluent in English
Study sites (1)
CT
- Connecticut Children's Medical Center · Hartford, CT 06106More trials in Hartford