Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Who can join
As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.
- Age
- 1 Day to 21 Years
- Sex
- All sexes
- Healthy volunteers
- Not accepted
- Compensation
- Not stated
Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.
What to expect
No one can promise a trial will help you personally — that is what the research is trying to find out.
What participation involves
Not stated in the study description — ask the study team about visits and procedures.
- Compensation
- Not stated
- Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
- Participants are monitored closely by the research team throughout the study.
- Some participants may receive access to an investigational treatment, which is still being studied.
- Your participation helps researchers learn whether this approach could help future patients.
About this study
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Compensation is read from the study's own description and may be missing — always confirm with the study team.
Eligibility
Official eligibility criteria
Inclusion Criteria: * The subject's age of onset of pulmonary hypertension must be prior to age 18 years * The person providing consent must be able to read either Spanish or English. * The subject (and/or parent/legal guardian) must be able to provide informed consent Exclusion Criteria: * Diagnosed with pulmonary hypertension after age 18 * Refusal to sign informed consent
Study sites (13)
CA
- Stanford University Medical Center · Palo Alto, CA Rachel Hopper, MD · Study contact · rhopper@stanford.eduRachel Hopper, MD · Study contactMore trials in Palo Alto
- University California San Francisco · San Francisco, CA Roberta Keller, MD · Study contact · roberta.keller@ucsf.eduRoberta Keller, MD · Study contactMore trials in San Francisco
CO
- Children's Hospital Colorado · Aurora, CO 80045David D. Ivy, MD · Study contact · Dunbar.Ivy@childrenscolorado.orgRobin Mascotti · Study contact · Robin.mascotti@childrenscolorado.orgDavid D Ivy, MD · Study contactMore trials in Aurora
FL
- Johns Hopkins All Children's Heart Institute · St. Petersburg, FL Grace Freire, MD · Study contact · Gfreire1@jhmi.eduGrace Freire, MD · Study contactMore trials in St. Petersburg
MA
- Boston Children's Hospital · Boston, MA Mary Mullen, MD · Study contact · Mary.Mullen@cardio.chboston.orgMary Mullen, MD · Study contactMore trials in Boston
MD
- Johns Hopkins Children's Center · Baltimore, MD Jenny Schramm, MD · Study contact · schrammj@jhu.eduAllen Everett, MD · Study contactMore trials in Baltimore
NY
- Columbia University Medical Center · New York, NY Usha Krishnan, MD · Study contact · usk1@cumc.columbia.eduUsha Krishnan, MD · Study contactMore trials in New York
- Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center · New York, NY Erika Rosenzweig, MD · Study contact · Erika.bermanrosenzweig@wmchealth.orgErika Rosenzweig · Study contactMore trials in New York
OH
- Cincinnati Children's Hospital Medical Center · Cincinnati, OH Russel Hirsch, MD · Study contact · russel.hirsch@cchmc.orgRussel Hirsch, MD · Study contactMore trials in Cincinnati
PA
- Children's Hospital of Philadelphia · Philadelphia, PA Catherine Avitabile, MD · Study contact · AvitabileC@email.CHOP.EDUCatherine Avitable, MD · Study contactMore trials in Philadelphia
TN
- Vanderbilt University Medical Center · Nashville, TN Eric Austin, MD · Study contact · eric.austin@Vanderbilt.eduEric Austin, MD · Study contactMore trials in Nashville
TX
- Texas Children's · Houston, TX Nidhy Varghese, MD · Study contact · npvarghe@texaschildrens.orgNidhy Varghese, MD · Study contactMore trials in Houston
WA
- Seattle Children's Hospital · Seattle, WA Delphine Yung, MD · Study contact · delphine.yung@seattlechildrens.orgDelphine Yung, MD · Study contactMore trials in Seattle