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PPMI Clinical - Establishing a Deeply Phenotyped PD Cohort

The Parkinson's Progression Markers Initiative (PPMI) Clinical - Establishing a Deeply Phenotyped PD Cohort

Who can join

As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.

Age
30 Years and older
Sex
All sexes
Healthy volunteers
Accepted
Compensation
Not stated

Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.

What to expect

No one can promise a trial will help you personally — that is what the research is trying to find out.

What participation involves

Not stated in the study description — ask the study team about visits and procedures.

Compensation
Not stated
  • Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
  • Participants are monitored closely by the research team throughout the study.
  • Some participants may receive access to an investigational treatment, which is still being studied.
  • Your participation helps researchers learn whether this approach could help future patients.

About this study

In plain language

This study follows people over time to learn how Parkinson’s disease changes and find signs that could help future treatment studies. It includes people with Parkinson’s, people with early signs before a diagnosis, and healthy volunteers. It observes changes rather than testing a treatment.

The Parkinson Progression Marker Initiative (PPMI) is a longitudinal, observational, multi-center natural history study to assess progression of clinical features, digital outcomes, and imaging, biologic and genetic markers of Parkinson's disease (PD) progression in study participants with manifest PD, prodromal PD, and healthy controls. The overall goal of PPMI is to identify markers of disease progression for use in clinical trials of therapies to reduce progression of PD disability.

Compensation is read from the study's own description and may be missing — always confirm with the study team.

Eligibility

Who can join

  • Healthy volunteers: Age 57 or older.
  • Parkinson’s groups listed here: Age 30 or older, diagnosed within the past 2 years, and in stage I or II (early disease).
  • Parkinson’s groups: Have at least two signs—shaking at rest, slow movement, or stiff muscles—or shaking at rest or slow movement that affects one side more.
  • Standard Parkinson’s group: Not expected to need Parkinson’s medicine for at least 6 months after the starting visit.
  • LRRK2 or GBA Parkinson’s group: Have a confirmed disease-causing gene change. Accept genetic testing and learn the results, or provide approved past results.
  • Qualify based on a SPECT brain scan. If taking certain medicines, be willing and medically able to pause them long enough before the scan.
  • Be able to give informed consent, meaning agreeing after learning about the study. Active PPMI members do not need eligibility rechecks, but still need consent, which may involve a chosen research representative.
  • If able to become pregnant: Do not be pregnant, breastfeeding, or planning pregnancy during the study. Have a negative pregnancy test before the scan injection.

Who can't join

  • Healthy volunteers: Have a birth parent, sibling, or child with Parkinson’s.
  • Healthy volunteers: Have a current serious brain or nerve disorder. Healthy volunteers and the standard Parkinson’s group: A past MRI shows a serious brain or nerve disorder.
  • Standard Parkinson’s group: Currently take Parkinson’s medicine. Low-dose medicine for restless legs may be allowed with study approval.
  • Standard Parkinson’s group: Took levodopa, dopamine agonists, MAO-B inhibitors, or amantadine within 60 days before the starting visit, or took levodopa or dopamine agonists for more than 90 days total.
  • Standard Parkinson’s group: Have dementia or a Parkinson’s-like condition caused by medicines or another disease.
  • All three groups with full criteria provided: Took dopamine-blocking medicines, metoclopramide, or reserpine within 6 months before screening.
  • All three groups: Take blood thinners or have spine or bleeding problems that make a spinal tap unsafe. A spinal tap collects fluid from the lower back.
  • All three groups: Have another health condition, mental health condition, lab result, or other reason the study doctor says makes participation unsuitable.

Simplified for readability. The official criteria below are what the study team uses.

Official eligibility criteria

7.1 Healthy Controls (HC) Note: Active Healthy controls previously enrolled in PPMI do not require re-assessment of eligibility criteria listed below for enrollment in PPMI Clinical. Active participants do need to be able to provide informed consent for PPMI Clinical participation (includes use of a designated research proxy). 7.1.1 Inclusion Criteria (HC) 1. Male or female age 57 years or older at Screening visit. 2. Individuals taking any of the following drugs: alpha methyldopa, methylphenidate, amphetamine derivatives or modafinil, must be willing and medically able to hold the medication for at least 5 half-lives before SPECT imaging. 3. Confirmation that participant is eligible based on Screening SPECT imaging. 4. Able to provide informed consent. 5. Either is male, or is female and meets additional criteria below, as applicable: * Female of childbearing potential who is not pregnant, lactating, or planning pregnancy during the study and has a negative pregnancy test on day of Screening SPECT imaging test prior to injection of DaTscanTM. 7.1.2 Exclusion Criteria (HC) 1. First degree relative with PD (i.e., biologic parent, sibling, child). 2. Current or active clinically significant neurological disorder (in the opinion of the Investigator). 3. Previously obtained MRI scan with evidence of clinically significant neurological disorder (in the opinion of the Investigator). 4. Received any of the following drugs: dopamine receptor blockers (neuroleptics), metoclopramide and reserpine within 6 months of Screening visit. 5. Current treatment with anticoagulants (e.g., coumadin, heparin, oral thrombin inhibitors) that might preclude safe completion of the lumbar puncture. 6. Condition that precludes the safe performance of routine lumbar puncture, such as prohibitive lumbar spinal disease, bleeding diathesis, or clinically significant coagulopathy or thrombocytopenia. 7. Any other medical or psychiatric condition or lab abnormality, which in the opinion of the investigator might preclude participation. 8. Any other reason that, in the opinion of the investigator, would render the participant unsuitable for study enrollment. 7.2 Parkinson's Disease (PD) Note: Active PD participants previously enrolled in PPMI do not require re-assessment of eligibility criteria listed below for enrollment in PPMI Clinical. Active participants do need to be able to provide informed consent for PPMI Clinical participation (includes use of a designated research proxy). 7.2.1 Inclusion Criteria (PD) 1. Male or female age 30 years or older at Screening Visit. 2. A diagnosis of Parkinson's disease for 2 years or less at Screening Visit. 3. Not expected to require PD medication within at least 6 months from Baseline. 4. Patients must have at least two of the following: resting tremor, bradykinesia, rigidity (must have either resting tremor or bradykinesia); OR either asymmetric resting tremor or asymmetric bradykinesia. 5. Hoehn and Yahr stage I or II at Baseline. 6. Individuals taking any of the following drugs: alpha methyldopa, methylphenidate, amphetamine derivatives or modafinil, must be willing and medically able to hold the medication for at least 5 half-lives before SPECT imaging. 7. Confirmation that participant is eligible based on Screening SPECT imaging. 8. Able to provide informed consent. 9. Either is male, or is female and meets additional criteria below, as applicable: * Female of childbearing potential who is not pregnant, lactating, or planning pregnancy during the study and has a negative pregnancy test on day of Screening SPECT imaging test prior to injection of DaTscanTM. 7.2.2 Exclusion Criteria (PD) 1. Currently taking levodopa, dopamine agonists, MAO-B inhibitors, amantadine or another PD medication, except for low-dose treatment of restless leg syndrome (with permission of medical monitor). 2. Has taken levodopa, dopamine agonists, MAO-B inhibitors or amantadine within 60 days of Baseline visit. 3. Has taken levodopa or dopamine agonists prior to Baseline visit for more than a total of 90 days. 4. Atypical PD syndromes due to either drugs (e.g., metoclopramide, flunarizine, neuroleptics) or metabolic disorders (e.g., Wilson's disease), encephalitis, or degenerative diseases (e.g., progressive supranuclear palsy). 5. A clinical diagnosis of dementia as determined by the investigator. 6. Previously obtained MRI scan with evidence of clinically significant neurological disorder (in the opinion of the Investigator). 7. Received any of the following drugs: dopamine receptor blockers (neuroleptics), metoclopramide and reserpine within 6 months of Screening visit. 8. Current treatment with anticoagulants (e.g., coumadin, heparin, oral thrombin inhibitors) that might preclude safe completion of the lumbar puncture. 9. Condition that precludes the safe performance of routine lumbar puncture, such as prohibitive lumbar spinal disease, bleeding diathesis, or clinically significant coagulopathy or thrombocytopenia. 10. Any other medical or psychiatric condition or lab abnormality, which in the opinion of the investigator might preclude participation. 11. Any other reason that, in the opinion of the investigator, would render the participant unsuitable for study enrollment. 7.3 Parkinson's Disease (PD) with LRRK2 or GBA variant Note: Active PD participants previously enrolled in PPMI do not require re-assessment of eligibility criteria listed below for enrollment in PPMI Clinical. Active participants do need to be able to provide informed consent for PPMI Clinical participation (includes use of a designated research proxy). 7.3.1 Inclusion Criteria (PD ¬- LRRK2 or GBA) 1. Male or female age 30 years or older at Screening Visit. 2. A diagnosis of Parkinson's disease for 2 years or less at Screening Visit. 3. Patients must have at least two of the following: resting tremor, bradykinesia, rigidity (must have either resting tremor or bradykinesia); OR either asymmetric resting tremor or asymmetric bradykinesia. 4. Hoehn and Yahr stage I or II at Baseline. 5. Confirmation of causative LRRK2 or GBA (willingness to undergo genetic testing as part of genetic screening and be informed of genetic testing results, or approved documentation of prior genetic testing results). 6. Individuals taking any of the following drugs: alpha methyldopa, methylphenidate, amphetamine derivatives or modafinil, must be willing and medically able to hold the medication for at least 5 half-lives before SPECT imaging. 7. Confirmation that participant is eligible based on Screening SPECT imaging. 8. Able to provide informed consent. 9. Either is male, or is female and meets additional criteria below, as applicable: * Female of childbearing potential who is not pregnant, lactating, or planning pregnancy during the study and has a negative pregnancy test on day of Screening SPECT imaging test prior to injection of DaTscanTM. 7.3.2 Exclusion Criteria (PD - LRRK2 or GBA) 1. Received any of the following drugs: dopamine receptor blockers (neuroleptics), metoclopramide and reserpine within 6 months of Screening visit. 2. Current treatment with anticoagulants (e.g., coumadin, heparin) that might preclude safe completion of the lumbar puncture. 3. Condition that precludes the safe performance of routine lumbar puncture, such as prohibitive lumbar spinal disease, bleeding diathesis, or clinically significant coagulopathy or thrombocytopenia. 4. Any other medical or psychiatric condition or lab abnormality, which in the opinion of the investigator might preclude participation. 5. Any other reason that, in the opinion of the investigator, would render the participant unsuitable for study enrollment. 7.4 Parkinson's Disease (PD) with SNCA or rare genetic variant Note: Active PD participants previously enrolled in PPMI do not require re-assessment of eligibility criteria listed below for enrollment in PPMI clinical. Active participants do need to be able to provide informed consent for PPMI Clinical participation (includes use of a designated research proxy). 7.4.1 Inclusion Criteria (PD - SNCA or rare genetic variant (such as Parkin or Pink1)) 1. Male or female age 30 years or older at Screening Visit. 2. Parkinson's disease diagnosis at Screening Visit. 3. Patients must have at least two of the following: resting tremor, bradykinesia, rigidity (must have either resting tremor or bradykinesia); OR either asymmetric resting tremor or asymmetric bradykinesia. 4. Hoehn and Yahr stage I, II, or III at Baseline. 5. Confirmation of causative SNCA or rare genetic variant (such as Parkin or Pink1) (willingness to undergo genetic testing as part of genetic screening and be informed of genetic testing results, or approved documentation of prior genetic testing results). 6. Individuals taking any of the following drugs: alpha methyldopa, methylphenidate, amphetamine derivatives or modafinil, must be willing and medically able to hold the medication for at least 5 half-lives before SPECT imaging. 7. Confirmation that participant is eligible based on Screening SPECT imaging. 8. Able to provide informed consent. 9. Either is male, or is female and meets additional criteria below, as applicable: * Female of childbearing potential who is not pregnant, lactating, or planning pregnancy during the study and has a negative pregnancy test on day of Screening SPECT imaging test prior to injection of DaTscanTM. 7.4.2 Exclusion Criteria (PD - SNCA or rare genetic variant (such as Parkin or Pink1)) 1. Received any of the following drugs: dopamine receptor blockers (neuroleptics), metoclopramide and reserpine within 6 months of Screening visit. 2. Current treatment with anticoagulants (e.g., coumadin, heparin) that might preclude safe completion of the lumbar puncture. 3. Condition that precludes the safe performance of routine lumbar puncture, such as prohibitive lumbar spinal disease, bleeding diathesis, or clinically significant coagulopathy or thrombocytopenia. 4. Any other medical or psychiatric condition or lab abnormality, which in the opinion of the investigator might preclude participation. 5. Any other reason that, in the opinion of the investigator, would render the participant unsuitable for study enrollment. 7.5 Prodromal Note: Active Prodromal participants previously enrolled in PPMI do not require re-assessment of eligibility criteria listed below for enrollment in PPMI Clinical. Active participants do need to be able to provide informed consent for PPMI Clinical participation (includes use of a designated research proxy). The specific predictive eligibility criteria for participants recruited through PPMI Remote to advance to PPMI Clinical will be iteratively optimized based on data collected from these studies. 7.5.1 Inclusion criteria (Prodromal) For Screening: 1. Confirmation that participant is eligible based on centrally determined predictive criteria including the University of Pennsylvania Smell Identification Test (UPSIT). * For participants in PPMI Remote, referral to the clinical site confirms predictive eligibility. * For participants identified by the clinical site, predictive criteria are based on generalized risk such as first degree biologic relative, known risk of PD including RBD, or known genetic variants associated with PD risk. Additionally, confirmation of UPSIT eligibility during the Screening visit prior to SPECT Imaging. 2. Male or female age 60 years or older (except age 30 years or older for SNCA, or rare genetic variants (such as Parkin or Pink1) participants). 3. Individuals taking any of the following drugs: alpha methyldopa, methylphenidate, amphetamine derivatives or modafinil, must be willing and medically able to hold the medication for at least 5 half-lives before SPECT imaging. 4. Able to provide informed consent. 5. Either is male, or is female and meets additional criteria below, as applicable: • Female of childbearing potential who is not pregnant, lactating, or planning pregnancy during the study and has a negative pregnancy test on day of Screening SPECT imaging test prior to injection of DaTscanTM. For continuation to Baseline visit and ongoing follow-up: 6. Confirmation that participant is eligible based on \*Screening SPECT imaging. * Screening SPECT Imaging eligibility: Based on the results of the SPECT imaging test, Prodromal participants eligible to continue their participation in PPMI Clinical will be asked to return for their PPMI Clinical baseline visit. Neither the participant nor the site investigator will be made aware of the participant's DAT status during the study. * It is anticipated that approximately 6,000 participants will complete a screening visit to undergo DAT imaging. Approximately 2,000 participants will be eligible to continue their participation in PPMI Clinical (those not eligible to proceed will remain in PPMI Remote, as applicable). * All participants with DAT deficit will be eligible to continue their participation in PPMI Clinical. It is estimated that about 75% of eligible participants will have a DAT deficit (defined by a hybrid of visual assessment and quantitative striatal specific binding analysis). * Some participants without DAT deficit will also be eligible to continue their participation in PPMI Clinical. These participants will be chosen based on DAT binding that is reduced from age expected but it not outside the normal range and/or from individuals with high-risk of PD including RBD, LRRK2, GBA, SNCA, or rare genetic variants (such as Parkin or Pink1) that do not demonstrate DAT deficit. It is estimated that about 25% of eligible participants will not have a DAT deficit. * It is anticipated that approximately 30% of the PPMI Clinical prodromal participants with DAT deficit will phenoconvert to motor parkinsonism during a 3 to 5-year follow-up. 7.5.2 Exclusion Criteria (Prodromal) 1. Clinical diagnosis of PD at screening, other parkinsonism, or dementia. 2. Received any of the following drugs: dopamine receptor blockers (neuroleptics), metoclopramide and reserpine within 6 months of Baseline Visit. 3. Current treatment with anticoagulants (e.g. coumadin, heparin) that might preclude safe completion of the lumbar puncture. 4. Condition that precludes the safe performance of routine lumbar puncture, such as prohibitive lumbar spinal disease, bleeding diathesis, or clinically significant coagulopathy or thrombocytopenia. 5. Any other medical or psychiatric condition or lab abnormality, which in the opinion of the investigator might preclude participation. 6. Currently taking levodopa, dopamine agonists, MAO-B inhibitors, amantadine or another PD medication, except for low-dose treatment of restless leg syndrome (with permission of medical monitor). 7. Has taken levodopa, dopamine agonists, MAO-B inhibitors or amantadine within 60 days of Baseline visit. except for low-dose treatment of restless leg syndrome (with permission of medical monitor). 8. Any other reason that, in the opinion of the investigator, would render the participant unsuitable for study enrollment.

Study sites (30)

AL

  • University of Alabama at Birmingham · Birmingham, AL 35294PPMI Call Center · Study contact · 877-525-7764David Standaert, MD · Sub-investigatorMarissa Dean, MD · Principal investigatorMore trials in Birmingham

AZ

  • Barrow Neurological Institute · Phoenix, AZ 85013PPMI Call Center · Study contact · 877-525-7764Holly Shill, MD · Principal investigatorMore trials in Phoenix
  • Mayo Foundation for Medical Education and Research · Scottsdale, AZ 85259PPMI Call Center · Study contact · 877-525-7764Shyamal Mehta, MD · Principal investigatorCharles Adler, MD · Sub-investigatorMore trials in Scottsdale
  • Banner Research Institute · Sun City, AZ 85351PPMI Call Center · Study contact · 877-525-7764Sara Dhanani, MD · Sub-investigatorDavid Shprecher · Principal investigatorMore trials in Sun City

CA

CO

  • University of Colorado Anschutz Medical Campus · Aurora, CO 80045PPMI Call Center · Study contact · 877-525-7764Michelle Fullard, MD · Principal investigatorMore trials in Aurora

CT

FL

GA

  • Emory University School of Medicine · Atlanta, GA 30329PPMI Call Center · Study contact · 877-525-7764Stewart A Factor, DO · Principal investigatorMore trials in Atlanta

IL

KS

MA

MD

MI

NV

  • Cleveland Clinic Lou Ruvo Center for Brain Health · Las Vegas, NV 89106PPMI Call Center · Study contact · 877-525-7764Zoltan Mari, MD · Principal investigatorMore trials in Las Vegas

NY

OH

OR

PA

TX

WA

  • Univ of Washington and VA Puget Sound Health Care System · Seattle, WA 98104PPMI Call Center · Study contact · 877-525-7764Cyrus Zabetian, MD · Principal investigatorMore trials in Seattle