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TSC Biosample Repository and Natural History Database

TSC Alliance Tuberous Sclerosis Complex (TSC) Biosample Repository and Natural History Database

Who can join

As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.

Age
No age limits stated
Sex
All sexes
Healthy volunteers
Not accepted
Compensation
Not stated

Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.

What to expect

No one can promise a trial will help you personally — that is what the research is trying to find out.

What participation involves

Not stated in the study description — ask the study team about visits and procedures.

Compensation
Not stated
  • Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
  • Participants are monitored closely by the research team throughout the study.
  • Some participants may receive access to an investigational treatment, which is still being studied.
  • Your participation helps researchers learn whether this approach could help future patients.

About this study

In plain language

This study collects and stores blood, DNA, and tissue samples for research. It links these samples to past and future health records to learn how the disease affects people over their lives. It is for people with tuberous sclerosis complex (TSC) or sporadic lymphangioleiomyomatosis (LAM).

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Compensation is read from the study's own description and may be missing — always confirm with the study team.

Eligibility

Who can join

  • You have been diagnosed with tuberous sclerosis complex (TSC), which causes growths in the body, or sporadic lymphangioleiomyomatosis (LAM), a lung disease.

Who can't join

    Simplified for readability. The official criteria below are what the study team uses.

    Official eligibility criteria

    Inclusion Criteria: * Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM). Exclusion Criteria: \-

    Study sites (24)

    AL

    CA

    CO

    FL

    IA

    IL

    MA

    MD

    MN

    MO

    NY

    OH

    PA

    TN

    TX

    VA