A Registry for People With T-cell Lymphoma
The T-cell Lymphoma Master Repository (TCLMR): A Prospective Databank of Patients With T-cell Lymphoma With Clinical Annotation and Matched Tumor Specimens
Who can join
As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.
- Age
- No age limits stated
- Sex
- All sexes
- Healthy volunteers
- Not accepted
- Compensation
- Not stated
Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.
What to expect
No one can promise a trial will help you personally — that is what the research is trying to find out.
What participation involves
Not stated in the study description — ask the study team about visits and procedures.
- Compensation
- Not stated
- Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
- Participants are monitored closely by the research team throughout the study.
- Some participants may receive access to an investigational treatment, which is still being studied.
- Your participation helps researchers learn whether this approach could help future patients.
About this study
The purpose of this registry study is to create a database-a collection of information-for better understanding T-cell lymphoma. Researchers will use the information from this database to learn more about how to improve outcomes for people with T-cell lymphoma.
Compensation is read from the study's own description and may be missing — always confirm with the study team.
Eligibility
Official eligibility criteria
Inclusion Criteria: * Written informed consent * Adequate fresh or archival tumor biopsy or intent to obtain fresh tumor biopsy. * Pathologically-confirmed mature T- or natural killer (NK)-cell lymphoma meeting one of the following diagnostic criterion (based on WHO classification and NCCN guidelines): * T-cell prolymphocytic leukemia * T-cell large granular lymphocytic leukemia * Chronic lymphoproliferative disorder of NK cells * Aggressive NK-cell leukemia * Systemic Epstein-Barr virus (EBV)-positive T-cell lymphoma of childhood * Chronic active EBV infection of T- and NK-cell type, systemic form * Hydroa vacciniforme-like lymphoproliferative disorder * Adult T-cell leukemia/lymphoma * Extranodal NK/T-cell lymphoma, nasal type * Enteropathy-associated T-cell lymphoma * Monomorphic epitheliotropic intestinal T-cell lymphoma * Intestinal T-cell lymphoma, not otherwise specified (NOS) * Indolent T-cell lymphoproliferative disorder of the gastrointestinal tract * Hepatosplenic T-cell lymphoma * Subcutaneous panniculitis-like T-cell lymphoma * Mycosis fungoides (limited to those with ≥ stage IB disease and those receiving active therapy) * Sézary syndrome * Primary cutaneous anaplastic large cell lymphoma (receiving systemic therapy) * Primary cutaneous Gamma-Delta T-cell lymphoma * Primary cutaneous CD8+ aggressive epidermotropic cytotoxic T-cell lymphoma * Primary cutaneous acral CD8+ T-cell lymphoma (receiving systemic therapy) * Peripheral T-cell lymphoma, not otherwise specified * Angioimmunoblastic T-cell lymphoma * Follicular T-cell lymphoma * Nodal peripheral T-cell lymphoma with TFH phenotype * Anaplastic large cell lymphoma, ALK-positive * Anaplastic large cell lymphoma, ALK-negative * Breast-implant associated anaplastic large cell lymphoma. * NOTE: Patients with diagnoses of mycosis fungoides, primary cutaneous anaplastic large cell lymphoma, and/or primary cutaneous acral CD8+ T-cell lymphoma must be receiving systemic therapy. Exclusion Criteria: * Patients with of mycosis fungoides, primary cutaneous anaplastic large cell lymphoma, and/or primary cutaneous acral CD8+ T-cell lymphoma not receiving systemic therapy. * Inability to collect prospective data, measure response, or perform adequate follow-up assessments in the clinical judgment of the treating physician. NOTE: Repository participation does not exclude participation in clinical trials, nor does existing clinical trial participation exclude enrollment in the study herein outlined.
Study sites (26)
CA
- City of Hope Cancer Center (Data collection only) · Duarte, CA 91010Jasmine Zain, MD · Study contact · 626-359-8111More trials in Duarte
- UNIVERSITY OF CALIFORNIA SAN DIEGO (Data collection only) · San Diego, CA 92103Aaron Goodman, MD · Study contact · 858-822-6100More trials in San Diego
- University of California San Francisco (Data collection only) · San Francisco, CA 94143Weiyun Ai, MD · Study contact · 415-353-2421More trials in San Francisco
- Stanford University Medical Center (Data collection only) · Stanford, CA 94305-5408Michael Khodadoust, MD · Study contact · 650-725-5071More trials in Stanford
CO
- University of Colorado (Data Collection Only) · Aurora, CO 80045Bradley Haverkos, MD · Study contact · 212-639-3983More trials in Aurora
CT
- Yale University (Data Collection Only) · New Haven, CT 06511Francine Foss, MD · Study contact · 203-200-4363More trials in New Haven
FL
- University of Miami (Data Collection Only) · Miami, FL 33136Jonathan Schatz, MD · Study contact · 305-243-5302More trials in Miami
- Moffitt Cancer Center (Data Collection Only) · Tampa, FL 33612Lubomir Sokol, MD, PhD · Study contact · 888-663-3488More trials in Tampa
GA
- Emory University (Data Collection Only) · Atlanta, GA 30322Pamela Allen, MD, MSc · Study contact · 404-778-0519More trials in Atlanta
IL
- Northwestern Medicine (Data Collection) · Chicago, IL 60611Jaehyuk Choi, MD, PhD · Study contact · 312-695-8106More trials in Chicago
MA
- Massachusetts General Hospital (Data Collection Only) · Boston, MA 02114Salvia Jain, MD · Study contact · 857-392-4495More trials in Boston
- Dana Farber Cancer Institute (Data Collection Only) · Boston, MA 02115Eric D Jacobsen, MD · Study contact · 877-442-3324More trials in Boston
MN
- Mayo Clinic (Data Collection Only) · Rochester, MN 55905Nora Bennani, MD · Study contact · 507-284-2511More trials in Rochester
MO
- Washington University (Data Collection Only) · St Louis, MO 63110Neha Mehta-Shah, MD, MSCI · Study contact · 314-747-1171More trials in St Louis
NE
- University of Nebraska (Data collection only) · Omaha, NE 68198-7680Matthew Lunning, DO, FACP · Study contact · 402-559-4000More trials in Omaha
NJ
- Memorial Sloan Kettering at Basking Ridge (All protocol activities) · Basking Ridge, NJ 07920Steven Horwitz, MD · Study contact · 646-608-2680More trials in Basking Ridge
- Memorial Sloan Kettering Monmouth (All protocol activities) · Middletown, NJ 07748Steven Horwitz, MD · Study contact · 646-608-2680More trials in Middletown
NY
- Memorial Sloan Kettering Cancer Center @ Suffolk-Commack (All protocol activities) · Commack, NY 11725Steven Horwitz, MD · Study contact · 646-608-2680More trials in Commack
- Memorial Sloan Kettering Westchester (All protocol activities) · Harrison, NY 10604Steven Horwitz, MD · Study contact · 646-608-2680More trials in Harrison
- Weill Cornell Medical Center (Data Collection Only) · New York, NY 10021Jia Ruan, MD, PhD · Study contact · 646-962-2064More trials in New York
- Memorial Sloan Kettering Cancer Center (All Protocol Activities) · New York, NY 10065Steven Horwitz, MD · Study contact · 646-608-2680More trials in New York
- Memorial Sloan Kettering Nassau (All protocol activities) · Uniondale, NY 11553Steven Horwitz, MD · Study contact · 646-608-2680More trials in Uniondale
OH
- Ohio State University (Data Collection Only) · Columbus, OH 43210John Reneau, MD, PhD · Study contact · 614-293-8000More trials in Columbus
PA
- University of Pennsylvania (Data Collection Only) · Philadelphia, PA 19104Stefan Barta, MD, MS, MRCPCUK · Study contact · (215) 316-5151More trials in Philadelphia
- Thomas Jefferson University Hospital (Data collection only) · Philadelphia, PA 19107Pierluigi Porcu, MD · Study contact · 215-955-8874More trials in Philadelphia
TX
- MD Anderson Cancer Center (Data Collection Only) · Houston, TX 77030Swami Iyer, MD · Study contact · 713-352-2952More trials in Houston