SMYLS Multi-site Trial
Self-Management for Youth Living With Sickle Cell Disease: SMYLS Multi-site Trial
Who can join
As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.
- Age
- 14 Years to 21 Years
- Sex
- All sexes
- Healthy volunteers
- Accepted
- Compensation
- Not stated
Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.
What to expect
No one can promise a trial will help you personally — that is what the research is trying to find out.
What participation involves
Not stated in the study description — ask the study team about visits and procedures.
- Compensation
- Not stated
- Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
- Participants are monitored closely by the research team throughout the study.
- Some participants may receive access to an investigational treatment, which is still being studied.
- Your participation helps researchers learn whether this approach could help future patients.
About this study
The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.
Compensation is read from the study's own description and may be missing — always confirm with the study team.
Eligibility
Official eligibility criteria
Inclusion Criteria: * documentation in the electronic health record of any type of SCD * owns mobile device compatible with the intervention * access to the internet Exclusion Criteria: * Plans to relocate outside of study site area in the next 12 months * Plans to transition to adult care in 12 months or less * Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study * non-English speaking
Study sites (1)
SC
- Medical University of South Carolina · Charleston, SC 29425Shannon Phillips, PhD, RN · Study contact · 843-792-9379 · phillipss@musc.eduMohan Madisetti · Study contact · 843-792-2059 · madisett@musc.eduMore trials in Charleston