Black and African Americans Connections to Parkinson's Disease (BLAAC PD)
Black and African Americans Connections to Parkinson's Disease (BLAAC PD) A Project of the Global Parkinson's Genetics Program (GP2)
Who can join
As published by the study on ClinicalTrials.gov. "Not stated" means the study hasn't said — ask the study team.
- Age
- 18 Years and older
- Sex
- All sexes
- Healthy volunteers
- Accepted
- Compensation
- Not stated
Other requirements are listed under Eligibility below. Only the study team can confirm whether you can join.
What to expect
No one can promise a trial will help you personally — that is what the research is trying to find out.
What participation involves
- Visits mentioned: 1 visit
- Procedures mentioned: Physical exams
Only what the study's summary and detailed description on ClinicalTrials.gov say. Time periods may describe the whole study or a part of it — ask the study team what applies to you.
Show the study's own words
- "Study volunteers at sites across the United States will attend one visit and will give either a blood or saliva sample, complete a smell test, and may be asked to complete a physical exam."
- Compensation
- Not stated
- Study-related exams and procedures are typically provided at no cost. This is how many trials work in general — confirm the details for this study with the study team.
- Participants are monitored closely by the research team throughout the study.
- Some participants may receive access to an investigational treatment, which is still being studied.
- Your participation helps researchers learn whether this approach could help future patients.
About this study
In plain language
BLAAC PD studies Parkinson's disease in Black and African American communities. It is for adults with and without Parkinson's disease. The study takes place across the United States and is part of a global project on genes and Parkinson's disease.
BLAAC PD is a research study to understand what Parkinson's disease looks like for Black and African American communities. BLAAC PD is happening at research centers around the United States. The study is part of the Global Parkinson's Genetics Program (GP2). GP2 is a research project working to transform understanding of the genetics of Parkinson's disease and make that knowledge globally relevant.
Compensation is read from the study's own description and may be missing — always confirm with the study team.
Eligibility
Who can join
- All participants must be able to understand the study and agree to take part.
- All participants must identify as Black or African American.
- People without Parkinson's disease must be age 50 or older.
- People with Parkinson's disease must be age 18 or older.
- People with Parkinson's disease must meet the Movement Disorder Society's rules for diagnosing the disease.
Who can't join
- People joining the group without Parkinson's cannot have Parkinson's or another condition affecting the brain or nerves.
- People joining the group without Parkinson's cannot have a family history of Parkinson's, diseases that cause brain or nerve cells to break down, or mental health conditions.
- People joining the group without Parkinson's cannot have an unknown family history of those conditions.
- People joining the group without Parkinson's cannot have a condition that the study doctor thinks would keep them from doing study activities.
- Anyone giving a saliva sample must not eat, drink, chew gum, use tobacco, or smoke for 30 minutes before the sample is collected.
Simplified for readability. The official criteria below are what the study team uses.
Official eligibility criteria
Inclusion Criteria for Control Participants: * Ability to provide informed consent * Age 50 years or older * Self-identify as Black or African American Exclusion Criteria for Control Participants: * Diagnosis of Parkinson's Disease and/or neurological condition * Familial history of PD and/or neurodegenerative or psychiatric conditions * Unknown family history of PD and/or neurodegenerative or psychiatric conditions * Any conditions that, in the investigator's opinion, preclude the individual's ability to carry out study activities * If submitting a saliva sample, nothing by mouth (food, drink, gum, tobacco, or smoking) for 30 minutes prior to sample collection Inclusion Criteria for Participants with a Diagnosis of PD: * Ability to provide informed consent * Age 18 years or older * Self-identify as Black or African American * Meet the Movement Disorder Society's clinical diagnostic criteria for Parkinson's disease Exclusion Criteria for Participants with a Diagnosis of PD: \- If submitting a saliva sample, nothing by mouth (food, drink, gum, tobacco, or smoking) for 30 minutes prior to sample collection
Study sites (12)
AL
- University of Alabama at Birmingham · Birmingham, AL 35233Joseph Richardson · Study contact · 205-934-0074 · jhrichardson@uabmc.eduLauren Ruffrage · Study contact · 205-934-5954 · lruffrage@uabmc.eduMarissa Dean, MD · Principal investigatorDavid Standaert, MD, PhD · Sub-investigatorMore trials in Birmingham
FL
- University of Florida · Gainesville, FL 32608Randy Foli · Study contact · 352-733-2433 · randy.foli@neurology.ufl.eduEmily Reynolds · Study contact · 352-733-2338 · Emily.Reynolds@neurology.ufl.eduAshley Rawls, MD · Principal investigatorLauren Fanty, MD · Sub-investigatorMore trials in Gainesville
IL
- Rush University · Chicago, IL 60612Jacqueline Vanegas · Study contact · 312-563-0679 · jacqueline_vanegas@rush.eduDeborah Hall, MD · Principal investigatorMore trials in Chicago
- University of Chicago · Chicago, IL 60637Hanna Gilluly · Study contact · 773-633-8412 · hlancerio@bsd.uchicago.eduTao Xie, MD, PhD · Principal investigatorMahesh Padmananban, MD · Sub-investigatorMore trials in Chicago
LA
- Ochsner Clinic Foundation · New Orleans, LA 70121Dominique Thomas · Study contact · 504-842-3980 · dominique.thomas3@ochsner.orgJulia Staisch, MD · Principal investigatorSarah Breaux, MD · Sub-investigatorMore trials in New Orleans
- Louisiana State University Health Sciences Center Shreveport · Shreveport, LA 71103April Strickland · Study contact · 318-813-3610 · april.strickland@lsuhs.eduElizabeth Disbrow, PhD · Principal investigatorMore trials in Shreveport
MD
- University of Maryland · Baltimore, MD 21201Christina Cooper · Study contact · 410-328-7817 · ChristinaCooper@som.umaryland.eduRebecca Weimer · Study contact · 410 328-1883 · rweimer@som.umaryland.eduLisa Shulman, MD · Principal investigatorRainer von Coelln, MD · Sub-investigatorMore trials in Baltimore
- Kaiser Permanente Midatlantic States · Rockville, MD 20852More trials in Rockville
MO
- Washington University in St. Louis · St Louis, MO 63119Coordinator · Study contact · 314-273-5262 · NIL-BLAACPD@email.wustl.eduScott Norris, MD · Principal investigatorErin Foster, PhD, OTD-L · Sub-investigatorMore trials in St Louis
OH
- University Hospitals Cleveland Medical Center · Cleveland, OH 44106Ashley Hawkins · Study contact · 216-844-2327 · ashley.hawkins2@uhhospitals.orgCamilla Kilbane, MD · Principal investigatorMohamed Elkasaby, MD · Sub-investigatorMore trials in Cleveland
SC
- Medical University of South Carolina · Charleston, SC 29425Lisa Heidelberg · Study contact · 843-792-6463 · heidelbe@musc.eduVanessa Hinson, MD · Principal investigatorAndrew Ameri, MD · Sub-investigatorMore trials in Charleston
TX
- University of Texas Health Science Center, Houston · Houston, TX 77030Natalia Pessoa Rocha · Study contact · 713 500 7496 · natalia.pessoarocha@uth.tmc.eduErin Furr Stimming, MD · Sub-investigatorShivika Chandra, MD · Principal investigatorNatalia Pessoa Rocha, PhD · Sub-investigatorMore trials in Houston